The MPS Society provides, through a team of skilled staff, an individual UK wide advocacy support service to over 1300 members.
We are looking for an Advocacy Support Officer. This is a unique post offering a wide variety of learning opportunities in the field of lysosomal storage diseases. The post-holder will join a small team of full time advocacy officers based in Amersham providing a UK-wide service in areas including clinical management, social care, housing, education, transition, independent living, palliative care and bereavement. This is an office-based post but requires UK wide travel and includes some unsociable hours, evening and weekend work.
SPECIFIC AREAS OF RESPONSIBILITY
- To develop knowledge and understanding of MPS and related diseases.
- To develop expertise in a designated group of conditions in order to become the named worker for those conditions.
- Provide a telephone helpline service to MPS Society members, their families and carers by giving emotional and practical support. Also responding to enquiries from professionals.
- Provide an individual needs led advocacy service to members, their families and carers by providing support, information and guidance in areas such as; new diagnosis, education, social care, welfare benefits, home adaptations, befriending links, palliative care and bereavement. To include developing knowledge of relevant legislation and best practice.
- To work collaboratively with other professionals to ensure that assessment and provision of services are informed by a needs led approach, based on an accurate understanding and identification of needs.
- Support families to access best possible clinical management and care and to inform them of developments in clinical trials and treatment options, signposting as appropriate.
- Undertake regular UK wide travel as required to attend meetings, visit families and attend regional hospital clinics, conferences and training events. With occasional overseas travel. This will include working unsociable hours, over-night stays and weekend working.
- To support the preparation and organisation of regional and national events, attending as required. This will include assessing need, developing care plans and assessing risk.
- Support a UK wide befriending scheme.
- Promote awareness of MPS diseases and the work of the MPS Society by giving talks and presentations to outside organisations, professionals and the general public.
- Working with colleagues, undertake research opportunities as the opportunity presents itself.
- Provide general administrative support as needed, collecting and maintaining accurate records of our members to inform the MPS Society’s database.
- Respond to general telephone enquiries.
- The post holder would be expected to support individuals and families at end of life and post bereavement, developing the Society resources and identifying specific support needs.
- All members of staff are expected to participate in appropriate team meetings. Staff are also expected to attend training events relevant to their specific responsibilities.
- The post holder will be expected to assist with any reasonable duty at the request of the line manager for the post.
This is an essential car user post. Applicants must hold a current UK driving licence, with no more than 6 points and be able to drive UK wide as required.
Applicants should have relevant experience in the social care or health field. A qualification in social work would be desirable but is not essential.
All appointments are subject to DBS clearances.
Salary & Benefits
Applicants will be entitled to 25 days holiday pro rata; pension scheme and access to an employee assistance helpline. Salary is dependent on experience and qualifications.
This is an open advert and interviews will be held following receipt and assessment of suitable applications.
If you would like further information contact the MPS Office alternatively please click on apply to receive an application pack.
Successful candidates will be notified in writing. If you have not heard from us in 4 weeks please assume your application has been unsuccessful
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